Caregiver Training in the Management of Neurogenic Bladder in Individuals with Spinal Cord Injury: A Case Report
DOI:
https://doi.org/10.56294/ri2025116Keywords:
Rehabilitation Nursing, Caregiver Training, Neurogenic Bladder, Spinal Cord Injury, EmpowermentAbstract
Introduction: Spinal cord injury presents a significant challenge for rehabilitation, with neurogenic bladder being one of its most demanding complications. Proper management is crucial for the quality of life of affected individuals, often requiring caregiver involvement. Rehabilitation Nursing plays a central role in empowering the caregiver, ensuring continuity of care after the hospital period.
Objective: To describe the outcomes of caregiver training in managing neurogenic bladder in individuals with spinal cord injury, conducted by a Rehabilitation Nursing Specialist, focusing on promoting autonomy and empowerment of both the person and their family.
Methods: Case report based on the CARE guidelines, detailing the intervention of the Rehabilitation Nursing Specialist in training the individual's father. The results were measured using the Barthel Index, the Functional Independence Measure, and knowledge gains.
Results: The active involvement of the caregiver in neurogenic bladder management allowed for continuity of care during the post-hospital period, minimizing risks and promoting a smoother adaptation to the home environment. Caregiver empowerment contributed to reduced institutional dependence and a safer transition to the community setting.
Conclusion: Caregiver training proved to be essential for managing neurogenic bladder, facilitating rehabilitation and preserving the autonomy of individuals with spinal cord injury. The intervention by the Rehabilitation Nursing Specialist, grounded in Orem's Self-Care Theory and Meleis' Transition Theory, highlights the need for a holistic and participative approach in rehabilitation.
References
1. Panicker JN. Neurogenic bladder in spinal cord injury: a clinical review. Nat Rev Urol. 2020;17(1):51–66. Available from: https://doi.org/10.1038/s41585-019-0254-3
2. Hoeman SP. Enfermagem de Reabilitação: aplicação e processo. Lisboa: Lusociência; 2000.
3. Ordem dos Enfermeiros. Guia de boa prática de cuidados de enfermagem à pessoa com traumatismo vertebro-medular [Internet]. Lisboa: Ordem dos Enfermeiros; 2009 [cited 2025 Mar 4]. Available from: https://repositorioenfreab.com/wp-content/uploads/2018/09/guia-de-boa-prc3a1tica-de-cuidados-de-enfermagem-c3a0-pessoa-com-traumatismo-vc3a9rtebro-medular.pdf
4. Ordem dos Enfermeiros. Regulamento dos padrões de qualidade dos cuidados especializados em enfermagem de reabilitação [Internet]. Lisboa: Ordem dos Enfermeiros; 2018 [cited 2025 Mar 4]. Available from: https://www.ordemenfermeiros.pt/media/8141/ponto-4_regulamento-dos-padrões-qualidade-ceer.pdf
5. Orem DE. Nursing: concepts of practice. 5th ed. St. Louis: Mosby; 1991.
6. Meleis AI. Transitions theory: middle range and situation specific theories in nursing research and practice. New York: Springer Publishing Company; 2010.
7. Smith EM, Boucher N, Miller WC; SCIRE Research Team. Caregiving services in spinal cord injury: a systematic review of the literature. Spinal Cord. 2016;54(7):562–9. Available from: https://doi.org/10.1038/sc.2016.8
8. Roth EJ, Davidoff G, Haughton J, Ardner M. Functional assessment in spinal cord injury: a comparison of the Modified Barthel Index and the 'adapted' Functional Independence Measure. Clin Rehabil. 1990;4(4):277–85. Available from: https://doi.org/10.1177/026921559000400405
9. Ordem dos Enfermeiros. Enfermagem de reabilitação: instrumentos de recolha de dados para a documentação dos cuidados especializados em enfermagem de reabilitação [Internet]. Lisboa: Ordem dos Enfermeiros; 2016 [cited 2025 Mar 4]. Available from: https://www.ordemenfermeiros.pt/arquivo/colegios/Documents/2017/InstRecolhaDadosDocumentacaoCuidEnfReabilitacao_Final_2017.pdf
10. Sampaio FMC, Araújo OSS, Sequeira CAC, Lluch Canut MT, Martins T. Evaluation of the psychometric properties of NOC outcomes “Anxiety Level” and “Anxiety Self-Control” in a Portuguese outpatient sample. Int J Nurs Knowl. 2018 Jul;29(3):184–91. Available from: https://doi.org/10.1111/2047-3095.12169
11. Moorhead S, Swanson E, Johnson M. Nursing outcomes classification. 7th ed. St. Louis: Elsevier; 2023.
12. Sousa L, Martins MM, Novo A. A enfermagem de reabilitação no empoderamento e capacitação da pessoa em processos de transição saúde-doença. Rev Port Enf Reab. 2020 Sep 16;3(1):63–8. Available from: https://doi.org/10.33194/rper.2020.v3.n1.8.5763
13. LaVela SL, Etingen B, Miskevics S, Goldstein B. Health care utilization, satisfaction, and health status in spinal cord injury caregivers and care recipients. Top Spinal Cord Inj Rehabil. 2015;21(2):152–64. Available from: http://dx.doi.org/10.1179/2045772314Y.0000000240
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Copyright (c) 2025 Sandy Severino, Pedro Rodrigues, Márcio Ribeiro, Luís Sousa (Author)
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